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Adult Congenital Heart Association
Information, resources and support for adults with congenital heart disease.
http://www.achaheart.org/
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Canadian Adult Congenital Heart Network
Provides information for patients and physicians about the care of adults with congenital heart problems.
http://www.cachnet.org/
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Congenital Heart Disease Information and Resources
Interactive forums, Internet links, and peer-reviewed informational materials for families, adults with CHD, and health professionals.
http://www.tchin.org
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CongenitalHeartDefects.com
Information, resources and support for families and individuals dealing with congenital heart defects. Definitions of CHDs and medical terms, extensive list of support groups and hospitals.
http://www.congenitalheartdefects.com
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Heart Disease Online
A collection of articles on the different kinds of congenital heart defects, including their treatment by surgery, written in simple, non-technical language.
http://www.heartdiseaseonline.com
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Imperfect Hearts
Includes interactive forums, Jara's story, and parent support.
http://www.imperfecthearts.net
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International Society for Adult Congenital Cardiac Disease
The site offers resources for doctors and other health-care professionals in the field of ACHD and for ACHD patients. Visitors can search for ISACCD members.
http://www.isaccd.org/
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MedicineNet
Detailed look at congenital heart disease, such as the causes, symptoms, types and treatments.
http://www.about-heartdisease.com
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Miami Children's Hospital
Department of Cardiovascular Surgery provides a list of surgeries performed along with actual pictures and a lot of information about each. A form on-site to ask questions or give comments.
http://www.pediatricheartsurgery.com
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The Children's Heart Society
Information about this non-profit, volunteer based support group, dedicated to helping families affected by Congenital Heart Disease/Defects.
http://www.childrensheart.org/
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Vivian Lemke's HLHS Story
Hypoplastic Left Heart Syndrome (HLHS) information page and her life with her sisters in The Lemke Family.
http://www.lemkefamily.com
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