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Spastic Paraplegia Foundation Supports on the upper motor neuron disorders hereditary spastic paraplegia and primary lateral sclerosis. Information about these conditions, disability resources, newsletters, news, announcements, research and support.
http://sp-foundation.org/
The FSP Support Group For people suffering from Familial Spastic Paraplegia. Includes a newsletter, discussion forum, links, and contact details.
http://www.fspgroup.org